Two Mistakes

I am not the oldest para I know by a long shot – as many readers are quick to remind me – but I have been around the barn enough times to see how I’ve taken care of myself (with unending help from my wife) or more importantly, how I haven’t taken care of myself. AR-SITS-POOL-Jan-05-2023-05-47-42-2880-PMThe upshot is that I’ve caused both of us a river of grief. Even before I made two big mistakes, I almost did myself in, stupidly. I stopped taking blood-thinning drugs when I left the hospital on my initial stay. No one said anything, so I just stopped. Three weeks later, I passed out on a city street and ended up in the hospital with a pulmonary embolism. It was serious. One misstep like that could have killed me.

The underlying source of most of my daily problems is, at this point, unfixable. I have severe contracture of the knees. Contracture is when your knee joint freezes in a bent position. The muscles and tendons become inelastic from disuse. I didn’t know the word until the problem presented itself only a few months after my injury. There are ways to reverse contracture in the early stages – first, stretching exercises, done religiously, or cumbersome metal or plastic leg braces that you wear, usually at night. Both need to be sustained for months on end. I tried the braces, more than once, and simply became discouraged with the uncomfortable nightly ritual and gave up.

The most definitive solution is surgery to loosen the tendons – filet them, as one surgeon described it. I was fifteen years younger when I seriously considered this option. It would have been six or more months of repair and recovery at a time I didn’t think I could afford the time off. Even then, my internist thought the procedure was too risky, but at least one specialist who had done many such operations said, for myriad reasons, to do it.

I didn’t do it. I vacillated until it was too late. Now, at my age, no surgeon would recommend such elective surgery and I feel the full impact of my delay. Chronically bent legs on beds, couches, and even rubbing against your chair are major causes of Mistake #2, pressure sores on my ankles, calves, and the sides of my knees. They also throw off your balance. And they prohibit you from using weight-loading devices to stand you up and aid blood flow and muscle strength. This last one is the killer. Because I got cold feet, as it were, I will never be able to straighten my legs again. That’s demoralizing.      

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Contracture opened the door to pressure wounds and my own lapses in self-care sealed the deal. Early on, I had wounds almost continuously, often involving late-night ER runs with high fever and serious infections. Still, I remained careless about avoiding or tending to these wounds. My unconscious presumption was, for 51 pre-paralysis years, I’d get all kinds of scraps and lesions from sports or accidents and they simply healed themselves. I was stuck in the past. Now they wouldn’t heal quickly and I blamed everyone but myself. The reality of wound care is that there are no shortcuts. A broken bone will heal twice as fast. They can cure many forms of cancer now, but they can’t cure or barely mitigate my problem. Healing is like watching grass grow.

I still struggle with these wounds, mostly on my ankles and calves, but now I am wound free. I’m getting increasingly conscientious in dealing with them, never taking a night off from anti-pressure maneuvers and having them constantly looked after by professionals.

Two mistakes made my life much more difficult and occasionally more dangerous. Wisdom, I guess, comes with age. Don’t let it take you twenty years to get wise to once-fixable blunders.

About the Author - Allen Rucker

Allen Rucker was born in Wichita Falls, Texas, raised in Bartlesville, Oklahoma, and has an MA in Communication from Stanford University, an MA in American Culture from the University of Michigan, and a BA in English from Washington University, St. Louis.

Allen Rucker

The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.

The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $10,000,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, ACL/HHS, or the U.S. Government.