Real Life Stories of a Disabled Mom: Effective Refereeing

When I started writing this blog, my oldest was in first grade, and my youngest was about to turn 2. Now I have a rising fifth grader and Kindergartener and my parenting role is constantly changing. Their feelings run the gamut of the emotional spectrum on any given day. That means if I limit time on the gaming system, I know I’ll hear that I’m the worst mother. I fully expect to hear that I’m both the best mom and ruining their lives multiple times a day.

Kieran_easter-1-1

My role four years ago was diaper duty, sesame street, juice, and snacks. Thankfully the diaper phase is long gone. I do miss Sesame Street; Pokemon isn’t a bad option though. Now there’s teachers, homework, friends, striking the balance between too many and not enough afterschool activities, self-image, nutrition, clothes, and sister/parent relationship management. They are all important for my girls’ development, but the one I engage in the most is sister/parent relationship management, aka referee.

Everyone in my house including me is strong-willed, passionate, and helpful. We are all “always right” and determined to fix everything for the people we love. So how do I manage two kids at different development stages who enjoy pushing each other’s buttons and mine without cracking in half? I don’t always. Being human and a parent generally means that at some point, I’ve had enough. But I keep trying.

I lead with love. Whether we’re hugging or having a “discussion” I say, “I love you.” I never want them to doubt my love. I also try to consider the feelings that lead to the action and subsequent discussion. Also, once the moment is over, it’s over. I revert back to their snuggly mama. If there’s a repercussion it stands. But I don’t hold their actions over them.

   Join Our Movement

What started as an idea has become a national movement. With your support, we can influence policy and inspire lasting change.

Become an Advocate

I try to regulate my emotions, so I can help with their dysregulated emotions. It can be as simple as taking a moment to get my bearings before I engage them or doing some box breathing to calm my body down, this makes the difference between diffusing a moment and escalating it.

Choosing my hill to defend also makes a difference. Kindness, supporting each other, hygiene, and safety are mission critical in our life. Whether or not I love what they’re wearing, they’re asking for a later bedtime or more video game time on a non-school night is not. I try to put myself in their shoes, and to get them to see each other’s perspective so they can choose their own hills to defend. Self-expression and having some decision power in their life is more important than me being right about everything.

Since I am the primary parent, it’s also critical that I recognize my hard limit, when it’s time to regroup and recharge. I appropriated a line from one of my kids’ favorite shows. “I need my 20 minutes.” I might exercise, put on my music, read a book, or if my spouse is home, scoot out for a coffee. When I come back from my downtime, I’m a more effective, happier mom. None of these work 100% of the time, but I keep trying.

About the Author - Kieran OBrien Kern

I’m Kieran Bridget O’Brien Kern. Power is literally my middle name. When my husband and I became engaged, we agreed that parenthood was a two-person job. I am the primary caregiver to our children, but we all work as a team. From infancy onward, we have adapted and grown together. Every day there is a new challenge. Every new challenge is an opportunity to learn more about them and myself.

Kieran OBrien Kern

The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.

The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $10,000,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, ACL/HHS, or the U.S. Government.