Caregiver Burnout Part 1: Your Needs Are Equally Important
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Become an AdvocateReflecting on these questions is an excellent starting point because it helps you identify what personal barriers are contributing to your feelings of caregiver burnout or exhaustion. Beyond the actual caregiving responsibilities, you may also experience high levels of stress because it can be emotionally taxing to witness someone you love or care for struggle with physical impairments due to a spinal cord injury. You may be involved in the medical life of a person with paralysis, you may be involved in making decisions on equipment, or you may be accompanying them to all different types of health appointments, which can sometimes be emotionally draining to think about everything that your care recipient is going through. You may also have a high level of stress over time as you become more aware of community barriers, employment barriers, or social barriers that impact the life of your care recipient. It's hard to feel like it's not fair that you have certain access and freedoms in the world while they may be facing more oppression and limitations. In other words, sometimes it's not simply the caregiving responsibilities of helping a person shower, get dressed, or use the bathroom, but rather it can also be these additional social and emotional factors that lead to high levels of stress for caregivers. Take a moment to reflect on the feelings and thoughts that you have felt in your life as a caregiver.
You may be perceived as a strong, unbreakable superhuman caregiver that is capable of handling everything all the time, but you probably know internally that's not true. If other people see you this way, remember it's okay to admit that you also struggle with certain things because nobody is a robot. You are a human, and like all humans, you are allowed to talk about the things that you are struggling with. Sometimes just opening up about what you're feeling to safe people you trust can help you feel an immediate sense of relief. You may benefit from joining the Reeve Foundation's "Caring for a Family Member Living with Paralysis" virtual support groups, as these provide opportunities for caregivers to connect with others who understand being in the role of a caregiver.
No matter what your experiences are, there are ways for caregivers to take steps to restore their wellness. My next blog will dive more into specific tips and strategies for addressing caregiver burnout. For now, I want you to know that your feelings matter, your mental health matters, and your own personal needs are equally important to the needs of your care recipient.
If you have questions or if I can be a resource for you, please don't hesitate to reach out—your mental health matters.
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