A Little Holiday Advice
Join Our Movement
What started as an idea has become a national movement. With your support, we can influence policy and inspire lasting change.
Become an AdvocateSo of course, I turned out the doctors and nurses around me, and asked “What is the prognosis? What lies ahead?” Their answer always started the same: “Every case is different.” That made me frustrated, hurt, and angry. Why wouldn’t they tell me? Or why couldn’t they tell me? I wanted to shout every obscenity I ever knew. I wanted to reach out and slap them (if I only could). But over time, I have come to realize that they were telling me the truth. Every spinal cord injury is different. No two patients respond the same way, recover the same way, or deal with our paralysis the same way.
And that brings me back to my advice: don’t let anyone tell you the “right” way to deal with the holidays. We all have differing religious or spiritual beliefs. Each of our families is unique. Each of us faces different challenges traveling. While we share many common elements, in the end we have to find what is “right” for us. One of the things I have learned over many years is to try to ignore the “shoulds”. “You should do this.” “You should react this way.” “You should do this or that. It will make you feel happy.”
The truth is that for some people the right answer is to ignore the holidays as much as possible, and try to just get through the persistent encouragement coming from advertising and social media to find joy in the season. For some, surrounding ourselves with friends and families brings us gratitude. For others, a little time off from work is an opportunity to relax and recharge for a few days. Each of these approaches has its merits, and all are “right” for some people, but not for others. If your friends are doing something you don’t want to do, don’t do it. If something makes you happy, and nourishes your soul, then by all means do it. But don’t get caught in the pressure cooker of enforced holiday joy and gladness. Make your own joy.
So there you have it: my advice is to shut out the loud voices of advice. Those of us with spinal cord injuries have enough challenges all year long. We don’t need to pile on other stresses just because other people advise us that some activity or some attitude is the “right” one for the season. Do what is right for you. Make your own happiness.