Spotlighting Spinal Muscular Atrophy Community Members
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Become an AdvocateAli Ramos
“Lived experience is oftentimes greater than a formal education,” she said. “The inaccessibility of the mental health field is prevalent now more than ever.”
When asked what would make life more accessible for her, Ali emphasized the need to be able to travel by plane without fear of her wheelchair or body being hurt. “I can't even imagine getting to fly somewhere safely and comfortably while remaining seated in my wheelchair,” she said. “That would be amazing!”
SMA and the National Paralysis Resource Center
Despite common perceptions, the term paralysis applies to more conditions than just Spinal Cord Injury. The National Paralysis Resource Center uses the definition of paralysis provided by our funder, the Administration on Community Living: any sort of mobility impairment. This means that conditions like Spinal Muscular Atrophy fall under the paralysis umbrella, and that people with SMA qualify for services through the NPRC.
Learn more by visiting our page on Spinal Muscular Atrophy and exploring resources available here.