Voices From The Community | Spinal Cord Injury & Paralysis

Self-Advocacy Exhaustion

Written by EmpowHer Stories | Jan 9, 2024 2:00:00 PM

Over the summer, I ended up traveling back-to-back to Las Vegas and 48 hours later to Austin, Texas. Airfare travel takes a lot of self-advocacy from people with disabilities, especially when they're traveling alone. During both of my trips, I had to self-advocate multiple times on how to safely maneuver my body on and off the plane and how to handle my chair in a safe manner. Even with self-advocating and educating the airport staff on how to do a two-man lift I was dropped. To say the least, I was experiencing self-advocacy exhaustion by the end of my second trip.

Self-advocacy is an important aspect of achieving personal goals, particularly for those who are part of underrepresented groups. It involves speaking up for oneself, asserting one's needs, and advocating for one's rights. However, self-advocacy can also be exhausting, especially when it is a constant and ongoing effort.

Self-advocacy exhaustion is a state of mental and emotional fatigue that results from the continual effort of advocating for oneself. It can manifest as feelings of frustration, burnout, and disengagement from the process of advocating for oneself. This exhaustion can be particularly challenging for individuals who are part of marginalized communities and face systemic barriers that require constant advocacy efforts.

One of the main causes of self-advocacy exhaustion is the emotional labor that comes with constantly having to assert oneself. This emotional labor includes the need to educate others about one's needs and rights, dealing with rejection or invalidation, and navigating complex systems that are not designed to accommodate one's needs. This can be especially taxing when these efforts do not result in the desired outcomes.

Another cause of self-advocacy exhaustion is the lack of support that individuals may face in their advocacy efforts. This support can come in many forms, such as access to resources, a supportive community, or allies who can amplify one's message. Without such support, individuals may feel isolated and powerless, leading to further exhaustion.