During the COVID-19 pandemic, the Reeve Foundation’s National Paralysis Resource Center created a special grants category (COVID-19: Addressing Social Isolation) for non-profit organizations to address social isolation by providing programs and projects to support the physical and mental health of people living with paralysis.
When COVID-19 began, the Spina Bifida Resource Network (SBRN) recognized the need to address the side effects of isolation. The quarantine and social isolation requirements left many feeling alone. SBRN provided support and community for those with paralysis or disabilities through creating virtual communities in innovative ways. SBRN is located in Flemington, NJ.
Millie Gonzalez, a volunteer at the Spina Bifida Resource Network, started the Virtual Empowerment Speaker Series (VESS). The VESS consists of weekly workshops coordinated, led, and attended by those with disabilities. The participants in VESS benefitted from creating spaces for human interaction and community care. The VESS provides skill-building, goal-setting skills, and fun.
The SBRN received $29,200 from the Christopher & Dana Reeve Foundation, allowing VESS to increase its reach to people with paralysis or disabilities nationwide.
Since its inception, the program has evolved and increased in size, to serve approximately 200 people a year. Much of the success lies with programs' ability to create personal connections and create extended networks.
The VESS sessions are peer-led weekly workshops. Because the sessions are created and led by people with disabilities, the workshops can provide a safe place for those who experience societal and physical barriers. The workshop participants and leaders understand the inequities because they have firsthand knowledge.
Those who attend the sessions can explore advocacy (to build a community united in changing and improving personal rights and systematic change), individual capacity building, and embracing their disability. The aim is to help people with disabilities achieve their goals and build a sense of empowerment.
The grant support provided by the Christopher & Dana Reeve Foundation, additionally supported program coordinators and workshop presenters. Stipends were given to leaders and artists with disabilities, acknowledging the importance of their role as experts and leaders in theirs and other communities.