Voices From The Community | Spinal Cord Injury & Paralysis

Mind, Body, and Soul

Written by Tyra Randle | May 7, 2025 1:00:00 PM

As a woman with a disability, I often face unique health challenges that can be overlooked in broader discussions about our health. For those of us who use wheelchairs, particularly as a result of spinal cord injuries, these challenges can be changed by various factors, including mobility limitations, societal attitudes, and healthcare access. Understanding and addressing the specific health needs in our community is essential for creating a sense of empowerment, well-being, and acknowledgment.

We often encounter various health issues that significantly impact our quality of life. One of the most common concerns is urinary tract infections (UTIs). We may experience altered bladder function, leading to an increased risk of UTIs. It is crucial to establish a routine for bladder management, whether through intermittent catheterization or other methods, and to remain vigilant about hydration and hygiene practices. I can honestly say UTIs are what I struggle with the most. No matter how clean I am or how well my hygiene practices are, I still manage to get a UTI. My body doesn’t like any foreign objects in or on my body. Plus, I can always drink more water and less juice.

Reproductive health is another area where we may face unique challenges. Understandably, there can be concerns about sexual health, menstrual cycles, and access to appropriate reproductive care. While some may experience altered sensations or difficulties in sexual function, it’s important to remember that intimacy can take many forms. Talking with healthcare providers who understand these issues can lead to personalized advice and care options that cater to your individual needs.

Mental health is an often-overlooked aspect of overall well-being. The psychological impact of living with paralysis and navigating a new life can lead to feelings of isolation, anxiety, or depression. It’s vital to seek support through therapy, peer groups, or community organizations. Building strong connections with others who understand the unique challenges of being a wheelchair user can create an invaluable support system. Connecting with like-minded communities can be incredibly valuable, whether through how you sustained your injury or by shared diagnosis. For example, if your spinal cord injury resulted from a car accident, gunshot wound, sports injury, or work-related incident, finding others with similar experiences can make a huge difference. You'll be surrounded by people who truly understand and can relate to your journey on a deeper level.

Women living with any form of paralysis face unique challenges, but with the right resources, support, and advocacy, it is possible to live a healthy, fulfilling life. By focusing on personal health needs, finding supportive communities, prioritizing mental wellness, and advocating for accessible healthcare, we can empower ourselves and others in the wheelchair user community.

Our health is a topic that should be front and center and not buried. It’s time to break the barriers, celebrate our strength, and move towards a future where we can all thrive, regardless of our mobility status.