If you are new to pediatric paralysis, you may be wondering if you have done everything possible for your child. If you are a long-term member of the pediatric community, it is always good to take a quick review to ensure you have all aspects covered. Here are some broad thoughts to help make sure your child is getting the best benefits of care now and in the future.
The brain and spine are rapidly developing in children. Nervous system adaptations continue as adults but at a much slower rate. The upside is that stimulation of the central nervous system (CNS) can trigger more connections and functions in a child. Be sure to look for opportunities to help your child’s nervous system progress as much as possible through movement, treatments, and upcoming research.
Medical treatment decisions fall to the parent of a younger child. Be sure you are providing the care needed to avoid health issues in later years. This includes performing personal care such as bowel, bladder, and skincare. Not providing these basic practices can lead to an overstretched bowel that no longer functions well, bladder complications that can destroy the kidneys, or scars from pressure injury that leaves skin more fragile as an adult.
Involve your child in the care you are providing even starting at the infant level with verbal descriptions. Allow the older child to participate as they are able. Knowing how to care for their own body is normal. This will help them transition to adulthood.
Children’s bodies and minds are constantly developing. Although paralysis may lead to adaptions in developmental milestones, make every effort to ensure they are progressing at a rate that is appropriate for them. Some milestones may be reached later or include the use of adaptive equipment or techniques.
As parents, we want to provide as much as we can for our children. Sometimes it can be hard to allow them to make their own decisions when appropriate. Guiding children is the role of the parent but do so considering the uniqueness of your child. Utilize resources to gain as much independence in physical care as possible. For example, parents do not feed or toilet adult children. If your child has the ability, help them gain independence in these skills. Their adaptions are their normal.