The Christopher & Dana Reeve Foundation’s Inaugural Virtual Congressional Advocacy Day
On Wednesday May 10, 2023, the Christopher & Dana Reeve Foundation hosted its first-ever Virtual Congressional Advocacy Day. The event provided a great opportunity for #VoicesForReeve advocates from across the nation to connect with their federal elected officials, share personal stories and advocate for three vital priorities affecting the paralysis community on behalf of the Reeve Foundation. With over 40 dedicated advocates participating—whom most were wheelchair users or caregivers—the day was filled with impactful discussions aimed at improving the lives of individuals living with paralysis, their families, and caregivers.
The first priority was the significance of the Paralysis Resource Center (PRC). #VoicesForReeve advocates emphasized the vital role played by the PRC in providing information, free resources, and support to anyone affected by paralysis. Our advocates underscored the necessity of Congress to continue level funding of $10.7 million in FY2024 for the PRC so it can continue the crucial services provided to paralyzed Americans. Any reduction to federal funding would jeopardize these supports.
Another key priority brought virtually to members’ offices was the dire need for improved airline travel for people with disabilities. Our #VoicesForReeve advocates shared their personal experiences and challenges faced when traveling by air. By emphasizing the importance of making air travel more accessible, our advocates urged their legislators to cosponsor the Air Carrier Access Amendments Act (ACAAA) (H.R. 1267/S. 545) and support its inclusion in the 2023 FAA Reauthorization later this year.
Lastly, the third priority discussed was caregiving in the United States. Caregivers play a crucial role in the lives of individuals living with paralysis. Many of the attendees voiced their personal caregiving experiences and advocated for Congress to prioritize identifying and adequately funding caregiving solutions for the paralysis community. They also asked if their legislator would be interested in hosting a town hall or listening session on the topic of caregiving in their district or state.
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The Virtual Congressional Advocacy Day left a lasting impression in the virtual Halls of Congress. The day consisted of 35 Senate meetings and 31 House meetings, with advocates meeting with Representatives and Senators from across the political spectrum, including 40 Democrat offices, 25 Republican offices, and 1 Independent office. The Reeve Foundation expresses its deepest gratitude to all the #VoicesForReeve advocates who generously devoted their time and efforts to making a difference in the lives of individuals living with paralysis. Their commitment and willingness in lending their voice to advocate on behalf of the community was truly remarkable. The Reeve Foundation extends a special thanks to the incredible individuals who were State Team Leads and to Reeve staff members whose invaluable assistance made this event possible.
Looking ahead, if you couldn’t participate this year, we hope and encourage everyone to sign up for next year’s Virtual Congressional Advocacy Day, details will be announced in the future. By participating in this annual event, we can continue to make a difference in the paralysis community.
For those who are interested in becoming an online Advocate for Change, please sign up here. Additionally, if you are interested in learning more about becoming a Reeve Foundation Regional Champion, please contact Gerard Arnum, our Grassroots Advocacy Manager at garnum@christopherreeve.org.